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Jamie J.2

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1 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

Hard to believe that I first learned of the TSC Alliance almost 8 years ago when my baby was diagnosed in utero during a routine ultrasound, the day after her due date. Lots of things go through your mind at that moment, as well as the days and weeks that followed. I was extremely fortunate to have found the TSC Alliance shortly after our diagnosis. They are a wonderful resource, not only for information about TSC, but with assistance making connections with physicians, applying for studies & clinical trials and simply having a conversation with someone that has already traveled down this path. I honestly do not know what I would have done without their guidance and resources as I navigated this new terrain. They are simply amazing.

Role:  General Member of the Public