My Nonprofit Reviews

Finding the MdDS Foundation website in August 2019 was like finding the key to a lock. I'd been experiencing debilitating symptoms for four months after I'd come back from an overseas trip. I finally self-diagnosed that I had MdDS by reading the info on their website. The website also used to have a directory of medical experts who were treating people with MdDS, and I was able to contact this physician's office. I still see him to this day. I've also found the website helpful with basic info about coping with MdDS and also with providing current research on the condition. The Facebook group has also been a great community for support and personal experience.

The MdDS Foundation provided me with the information to self-diagnose the strange symptoms I was having that no doctor could help me with. The Facebook page has been a major resource and source of support over the 17 months I’ve dealt with the syndrome. I check it once a day for information and stories of other people’s experiences. I know I’m not alone in my journey.