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Cure VCP Disease

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Review for Indo-US Organization for Rare Diseases, Herndon, VA, USA

Rating: 5 stars   Featured Review

Great organization that is focused on collaboration between USA and India rare disease patient advocacy organizations. IndoUSRare helped make a connection to doctors in India that were aware of my rare disease. This is just the start and networking is key in the rare disease space. IndoUSRare is a great facilitator and just getting started!

Role:  Professional with expertise in this field