My Nonprofit Reviews
Cure VCP Disease
Review for Indo-US Organization for Rare Diseases, Herndon, VA, USA
Great organization that is focused on collaboration between USA and India rare disease patient advocacy organizations. IndoUSRare helped make a connection to doctors in India that were aware of my rare disease. This is just the start and networking is key in the rare disease space. IndoUSRare is a great facilitator and just getting started!