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Joashline

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Review for SynGAP Research Fund - SRF (SYNGAP1), San Diego, CA, USA

Rating: 5 stars  

After our son was diagnosed with SynGAP in 2018 at the age of 16, we began searching for a community of families we could relate to. We always knew there was more to our son Andrew's story, and SynGAP filled in the "gaps" we had been living with for so long. SynGAP Research Fund became a source of hope, action, and purpose, and the people who make this non-profit so remarkable are an amazing group of parents, professionals and advocates determined to find treatments and ultimately a cure for our loved ones. We are so grateful for the tireless work of SRF and feel so lucky to be part of this organization.

Role:  Volunteer