My Nonprofit Reviews

Myositis Support and Understanding (MSU) is an exemplary nonprofit organization to volunteer with and be a part of. MSU is committed to providing heartfelt support and prioritizing the voices of patients, including those of its dedicated volunteers.

The organization’s initiatives—including support programs, financial assistance, cutting-edge research, and educational webinars—are all designed with the myositis community's needs at the forefront. MSU strives to create an inclusive environment where everyone feels valued and empowered, making it a leading force in myositis advocacy and support.

Myositis Support and Understanding (MSU) saved my life. I was drowning mentally and physically after being diagnosed. I felt so alone and miserable. Then I found the MSU website and their support groups. I joined one and it was like a light shining in my darkness. I was no longer alone. I had found others like me who I could really talk to. I had answers to my questions and suddenly some of the medical mountains I had to climb became so much easier. I had found my family. I had found my light again. I found my passion for helping others with myositis by volunteering. This organization helps so many people with myositis from our support groups to our Financial Assistance Program to our patient centered research and so much more.

When I was diagnosed in 2018 with Polymyositis I felt the world had ended. I had no idea what to expect or how I would be able to carve a life for myself and my family. I turned to the internet and found Myositis Support and Understanding (MSU). It saved my life. I found others who were exactly like me and understood what I was going through. I found their video support groups and got to talk to others who had been in my shoes and were thriving. MSU gave me hope, compassion and a purpose again. All of the volunteers are so compassionate and giving. To me it was and is a family.