My Nonprofit Reviews

I learned of my DES exposure in 1972. Since it’s inception DES action has been there for me. Continually keeping me informed with guidelines and updated screening tools I can take to my doctors. Over the decades I’ve relied on them, I truly don’t know how I could have lived this journey without their support, advocacy and new information as it came to light.

In fact DES action and their newsletter saved my life a few years ago. The Voice had an article stating that even if a DES Daughter had a hysterectomy that she should continue to have Pap testing as the risk of vaginal cancer does NOT diminish. I had been told I didn’t need pap testing. With great trepidation I took the newsletter to a local gynecological doctor. He found several localized lesions that were cancer. My cancer is managed with vigilance, testing, surgeries as indicated. I have no doubt that if I hadn’t gone upon receiving the Voice newsletter that cancer would have spread.