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CBaysden

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2 reviews

Review for SynGAP Research Fund - SRF (SYNGAP1), San Diego, CA, USA

Rating: 5 stars  

As a parent of a child diagnosed with Syngap1 and a volunteer leader within the Syngap Research Fund (SRF), I can confidently attest to the remarkable impact this organization has on families like mine.

From the moment of diagnosis in 2021, SRF stood as a pillar of support, extending a compassionate hand and providing invaluable resources to navigate the complexities of Syngap1. Their proactive outreach marked the beginning of an enduring partnership built on solidarity and shared determination.

What sets SRF apart is its unwavering commitment to fostering a sense of community among families, researchers, and advocates. Through collaborative efforts and collective resolve, we strive together toward a common goal: advancing scientific understanding and ultimately finding a cure for Syngap1.

Role:  Volunteer
 

Review for SynGAP Research Fund - SRF (SYNGAP1), San Diego, CA, USA

Rating: 5 stars  

Finding SRF has been one of the biggest blessings! They are well organized, strategic, and supportive. 100% of the donated funds go directly to research and they are doing the RIGHT research.... a multi-faceted approach to help our children/loved ones. Even though I lead an extremely busy life I started volunteering right away. They truly represent their values of
Collaboration/Transparency/Urgency

Role:  Volunteer