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afrye

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1 reviews

Review for SynGAP Research Fund - SRF (SYNGAP1), San Diego, CA, USA

Rating: 5 stars  

Having a child diagnosed with a rare disease can be the most isolating feeling a parent can experience. SRF has been a source of support and hope for our family. It not only brings families with a SynGAP1 diagnosis together to learn from one another, but is pushing the timeline up for potential clinical trials to help treat our loved ones. My family would be lost without SRF.

Role:  Volunteer