My Nonprofit Reviews

I was recently diagnosed with Mal de Debarquement Syndrome by my primary care doctor who has been working with another patient who has it. She did not offer me much in the way of hope, said going to an ENT would not help, and did not offer to refer me to a neurologist or vestibular therapist. I learned the value of a team approach from this MdDS site, and am pursuing the help needed. I have learned from the good people who contribute to this site thare there IS hope, there are therapies, and ways of managing symptoms. I felt so terrible about myself after living with this the 1st month, especially since the fatigue was so overwhelming, as was the anxiety. I went from an active, athletic 70 year old to a depressed, sedentary much older-seeming person in a short period of time. The group has taught me how to manage my limited energy resources while maintaining a modified exercise regimen. They have emphasized the importance of intermittent rest, the need for more sleep, and the need to have compassion for myself when dealing with the anxiety and depression that seem to go hand in hand with MdDS. I'm not alone in this anymore. There always seems to be near immediate support & advice, and some really detailed instructions for working on balance. This group has been invaluable to me and I'm most appreciative of all the effort that goes into making this such a valuable site.