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Sarah Lawry

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1 reviews

Review for Nevada Center for Biomedical Research, Reno, NV, USA

Rating: 5 stars  

WPI stands alone in it's approach to the science of ME and the suffering endured by millions - as a result of the disease and the policy of UK and US governments. Those with ME have been their own researchers, physicians and donors for research for decades. I have very little state benefit but send what money I can to WPI whilst doing all I can to campaign for a change in policy. To say that the WPI is like a beacon in the dark is an understatement - and there are more than 17 million ME sufferers that are hidden from most people's view. Please help the WPI to help us, the sufferers, for there is virtually no other organisation/ charity that can do such an effective job. The Lombardi et al 2009 paper was groundbreaking research and may lead to treatments for other folk effected by XMRV/ MLV such as those with autism, prostate cancer, atypical MS, Fibromyalgia, Lyme Disease and others.

I've personally experienced the results of this organization in...

helping to lobby the UK and Scottish governments to change their policy on ME - without their work, I could not be as effective in my campaigning.

If I had to make changes to this organization, I would...

have WPI representation in every country on the planet. I would also like to clone their staff for the benefit of mankind!

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

What specific problem, purpose, priority, or project prompted your gift?

the fact that government funding is not being made available and that they are dependent on impoverished ME sufferers and their friends/ families. No one else is fighting as hard as they are to improve or save my life and millions of others affected by ME/ XMRV/ MLV. I also believe that they can radically progress the quality of life for those affected by autism.

Why did you make your donation at this time?

I am making regular donations - there is little else that I am capable of doing.

What would you tell others about this organization?

if you want to help the ME cause, WPI is the only option.

When was your last experience with this nonprofit?

2011

Role:  Donor & I had hope for the first time in 30 years that I would have some answers to many questions and that the lives of my nieces may not be as pained and short as mine.
 
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