My Nonprofit Reviews

CDO is a tremendous, "one of a kind" resource for anyone who loves someone who has a chromosome disorder; or anyone who has a chromosome disorder. From access to medical information and research to the ability to network with others who are dealing with similar challenges; CDO fills a unique and much needed niche.

CDO is a unique nonprofit which fills a void in where the medical literature leaves off and where doctors and other medical professionals have little experience. There is no other organization which connects anyone impacted by a genetic disorder to the available medical information, researchers who are investigating that particular chromosome/deletion, parents and family members of others who have similar disorders, and parents/family members whose child might have an entirely different genetic makeup but similarities in needs or challenges. The volunteers dedicate enormous amounts of time and energy to supporting families. There is no other organization which fills this unique-and much needed and appreciated-gap in the available information. From how to handle a child who is behaving inappropriately in public to opportunities to connect with medical studies and research to how to juggle the needs of a child with special needs with the rest of the family and work-there is no better place to get a down-to-earth answer from someone "who has been there". CDO gives hope and practical support when and where it is most needed.