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dalevanallen

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1 reviews

Review for Myositis Support And Understanding Association, Lincoln, DE, USA

Rating: 5 stars  

I was diagnosed with dermatomyositis in 2018 and recently joined this group. I sure wish I had joined earlier because the benefit of listening to and speaking with other people who also have a rare disease is immeasurable. In addition to emotional support, the group offers the benefit of it's years of experience and learned expertise in dealing with all aspects of having a rare disease. The group leaders are dedicated and unwavering in their support. I couldn't ask for more.

Role:  Client Served