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TangledUpInKnots

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1 reviews

Review for Shwachman Diamond Syndrome Foundation Inc, Florence, KY, USA

Rating: 5 stars  

I have been receiving support from this foundation for many years. The family support is unmatched. The support page on Facebook has been instrumental in helping me and many many others. During times of crisis, we have gotten personal messages from so many - helping us to know we are not alone on this rare disease journey. The Foundation's dedication to family support and research is and has been historically, unmatched by any. I encourage all to support the Shwachman-Diamond Syndrome Foundation!

Role:  Client Served