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jack1956

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1 reviews

Review for Shwachman Diamond Syndrome Foundation Inc, Florence, KY, USA

Rating: 5 stars  

My child recently was diagnosed with sds. While I Google it I came up with sdsf. The group of women and men that I spoke to have been extremely helpful. They were able to find me a local dr that specializes in this rare illness. Several of them had messaged me at my lowest point to make sure I'm not alone. Thanking them alone is not enough, I pray that they can continue to work to find a cure

Role:  General Member of the Public