My Nonprofit Reviews

ssiqueiros
Review for Children's Cardiomyopathy Foundation, Inc., Tenafly, NJ, USA
My daughter was diagnosed with Restrictive Cardiomyopathy in January 2018. Hearing things like Cardiomyopathy and Heart Transplant is so scary and I started searching for any and everything about all things Cardiomyopathy. I came across this page and community and instantly felt like I wasn't alone in our one in a million condition.
Later that same year one of our twin boys suffered multiple cardiac arrests weeks after his first birthday. Both of my twin boys also had Restrictive Cardiomyopathy and also needed heart transplants. This organization is necessary for families like mine. For a condition with very little support, Children's Cardiomyopathy Foundation is a light for so many families.