My Nonprofit Reviews

When my husband Joel was diagnosed with MSA, we discovered the MSA Coalition and it has been a lifesaver for our whole family throughout our MSA journey. It is difficult for patients and families to navigate a rare disease like MSA, and the MSA Coalition provided us with invaluable information and support. We attended the annual conference in 2018 when my husband was in a wheelchair and we learned so much about living with MSA and about the latest medical research, and we met other patients and families who knew exactly what we were going through. We became friends with some of them and that provided a wonderful support system ever since. The MSA Coalition provides ongoing information about clinical trials and research, patient and family webinars, support groups, and so much more -- all of which provides a critical service to the MSA community.

I have been involved in other non-profits but have never encountered as many dedicated volunteers as the board members of the MSA Coalition. They are passionate, smart, organized, responsive, and always thinking about what they can do next to support MSA patients and families and to further the much-needed research into this rare disease. My husband passed away in February 2020 and our family cannot thank the MSA Coalition for the immeasurable support they provided to our family. It's an amazing, special organization!