My Nonprofit Reviews

The organization started in 2017 and I believe STXBP1 is the only organization committed to helping STXBP1 patients.
I would love to see speeding up the development of therapies and hopefully a cure for patients with STXBP1.
If you are not aware STXBP1 is a rare genetic epilepsy.
Patients also have a spectrum of other symptoms including intellectual disability, developmental delay, and motor difficulties.
It is a very debilitating experience for patients and naturally exhausting on family even care givers.
I encourage folks to support this organization.
Thank you,
Mitchell