My Nonprofit Reviews

Until I was diagnosed with MdDS in 2019, I had never heard of this rare neurological disorder. I came upon the MdDS Foundation website through my own online research after diagnosis, and I was incredibly thankful to the Foundation for providing me the knowledge and coping skills to navigate my way through doctor visits, daily life, and what my future may look like living with MdDS. I downloaded the MdDS Foundation brochure, and I carried at least a dozen in my purse to hand out to my doctors, dentist, chiropractor, massage therapist, acupuncturist, neuro optometrist, etc. Most of them had no knowledge of this neurological disorder, and they wanted to learn more. I became a volunteer with the MdDS Foundation to mail brochures to people requesting them. The more people we educate about this disorder, hopefully the more research will be done to help all of us MdDS sufferers and our caregivers.