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Review for DES Action USA, New York, NY, USA

Rating: 5 stars  

Hi. I am a DES daughter and have been a member of DES Action for many years. Believe it or not, My gynecologist told me about it years ago. I look forward to the newsletter as it alerts me to so many issues that we need to be made aware of. Unfortunately, many doctors are still not aware. Maybe 15 years ago I had an appointment with my family doctor. I was also having a female issue so decided to have him do an exam (something I would only have had my gynecologist normally do but thought I would save some time since I was already going to be at the family doctors office.) The family doctor scared me.
After looking inside, he quickly stopped the exam and while washing his hands said in all seriousness and a sense of urgency that I needed to get in to see my regular gynecologist right away as something was going on inside of me that wasn't right. I saw my regular gynecologist the next morning. He calmly said after his exam that I was fine that the family doctor just wasn't familiar with DES tissue!!! I was saddened for me when that gynecologist retired.

A few years back I was referred to an oncologist/gynecologist . Before I actually saw her, I handed the nurse the paper (from DES Action) on the proper way to perform an exam on a DES exposed daughter. She sincerely thanked me for the information sheet. I never would've known about all of this if it wasn't for DES Action. I would've just assumed all doctors who know what to do.
To sum this up, the information dispensed by the DES Action group gives me peace of mind knowing I have the latest information on DES exposure.

Role:  General Member of the Public