My Nonprofit Reviews

CFRI amazes me in how they continue growing ways to support the Cystic Fibrosis community. CFRI has been one of my main sources of support since the pandemic shutdown through their Zoom-based offerings. I want to also highlight their support group in Spanish which is unique and needed as well as their important role in advocating for people with Cystic Fibrosis. I can never thank CFRI enough for all they do for me and for our community.

CFRI continues to raise the bar for the many ways it cares for the well-being of people with CF, their families, and loved ones. The last 6+ months I have accessed yoga classes and support groups that have helped me to better manage my physical and mental health. Although I dearly missed the in-person CF Adult Retreat and CF Educational Conference, I did benefit from the live online versions of these activities. I was still able to connect with my peers, laugh, mourn, exercise, learn, and get up-to-date research and information from leading scientists and clinicians working with people with CF. The community I found through my connection to CFRI is a unique group of individuals who value a holistic approach to CF care and recognize the importance of quality of life, the importance of community and personal connection in maintaining quality of life, the importance of the more subjective indicators of health in addition to comprehensive medical care and therapies and objective indicators of health. Fellow adults with CF I have met over the years have served as role models of how to best care for CF while striving and working toward educational, professional, and personal goals. I am grateful to CFRI for creating the space to meet and develop strong, personal bonds with adults with CF and the greater CF community through in-person events.