My Nonprofit Reviews

I have received so much support from the Association from referrals and resources to connecting with other patients. It really has assisted in my journey from a patient perspective and I’m grateful for having the association as an entity that can provide a forum for our voice, advocate for further research, connect us but overall be a community where there are others that understand.

This association has been a true gift to me. Not only as a wealth of knowledge and offering resources from a patient perspective, but also offering a forum for support and connection to a community that can help me continue to navigate with a chronic condition while keeping me abreast of latest research and developments.