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CarolineT

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1 reviews

Review for Hydrocephalus Association, Bethesda, MD, USA

Rating: 5 stars  

When Harry was first diagnosed with Hydrocephalus we visited the Hydrocephalus Association's website and were able to read lots of case studies about living as a family with the condition. It helped us learn more and for the first time in weeks we felt less alone and more empowered.

We are based in the UK and have gone on to launch a UK based charity to support children living with the condition. The Association has provided guidence and support and has help on this journey.

Role:  Professional with expertise in this field