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krissy231

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1 reviews

Review for NBIA Disorders Association, El Cajon, CA, USA

Rating: 5 stars  

Learning of a friend's daughter's diagnosis was the first time I had heard of this tragic disease. I felt helpless and uneducated. NBIA Disorders was a terrific aid in learning about the condition in the hopes of becoming more understanding of their family's situation. It put me in a better position to be of assistance. The resources and aid they offer are great.

Role:  Volunteer