My Nonprofit Reviews

My grandaughter, Dylan, suffers from BPAN, which is a variation of NBIA. When doctors, after years of tests, were able to diagnose her disease my daughter and son-in-law needed to find out just what BPAN was. They found the NBIA Disorders Association and contacted the president of the Association, leaving a phone message . They were contacted with the hour, their questions were answered, and a relationship was established.

The conferences that the Association organizes are very informative and offer NBIA families the chance to come together for an harmonious weekend of learning and a chance to meet families from around the world struggling to beat this evil disease.

The monthly newsletter is filled with updates of research, along with news of fundraising opportunities.

The NBIA Disorders Association truly eases the lives of families touched by the disease.