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Jenny W.2

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1 reviews

Review for NBIA Disorders Association, El Cajon, CA, USA

Rating: 5 stars  

My daughter was diagnosed in May of 2019 with BPAN. We were lost and devastated, but not lost for long because we found NBIA DA, and they connected us with other families and we created connections that have honestly held me together through this tough time. NBIA DA is a tremendous resource for my family. They have always been there for us with information, resources, valuable service, and I know they do all they can with our donations to help in their mission to find a cure for NBIA.

Role:  Client Served