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jillndv

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1 reviews

Review for Alternating Hemiplegia of Childhood Foundation Inc, Southfield, MI, USA

Rating: 5 stars  

Up until a couple years ago, I, like most of the general public, had never heard of AHC. I learned of this nonprofit through family friends, whose daughter Estella, suffers from this horrible illness. Every day, they are plagued with the question of whether today will be a "good" day for their daughter, or a day filled with episodes of paralysis, waiting for their daughter to return to her "normal" self. Their story, and their faith through this journey have been inspiring to say the least. We are so hopeful, that a cure through gene therapy will be found, and their lives will be forever changed. We were able to participate in a race for AHC a couple weeks ago, in hopes that we might raise awareness and show support for the AHC community. We pray for sweet Estella and the other families who are affected by AHC daily.

Role:  General Member of the Public