My Nonprofit Reviews

I have worked with Global Genes since its earliest days and watched it grow as an organization. It has evolved to meet the changing needs and increasing sophistication of the rare disease patient community. It has been tireless in meeting its mission and consistently driven to act in the best interest of patient advocates. It has provided the platform, tools, and training to advocates that have enabled them to make their voices heard, shape research agendas, drive the development of needed therapies, and improve standards of care.