My Nonprofit Reviews
themorrises
Review for SynGAP Research Fund - SRF (SYNGAP1), San Diego, CA, USA
When our son was finally diagnosed with Syngap1 we were in a state of complete despair. Syngap1 is devastating to brain function and causes many other symptoms which, even individually are difficult to tackle. When you combine them all, it's overwhelming.
Syngap Research Fund has given us so much great advice which has massively improved both our young child's quality of life and also ours - as parents and also 24/7 caregivers.
In addition to that, weekly meetings of the SRF support group give strength to us all and remind us we are not alone. We share successes and failures, always learning from each other. Any time I reach out to them, they are quick to respond and always kind & caring.
SRF is run by parents of Syngapians and they really understand what we are going through.
Thank you so much SRF.
More Feedback
If I had to make changes to this organization, I would...
Give them more resources to continue searching for treatments/cures and to support the affected families who are trying so hard.
