My Nonprofit Reviews

My daughter was diagnosed with Turners syndrome in Utero, and we have been exposed to a lot of misinformation about this genetic disorder from our first genetic counseling session, and from various providers who don't know enough about Turners to provide really good guidance when dealing with their medical care and individual situations.
The Turner Syndrome Foundation has been a tremendous support system for not only my daughter, but for parents of Turner girls. From a young age, my daughter met others similar to her at a camp for Turner girls and other social functions put together by the Foundation, and now that she is in her twenties, she tries to keep abreast with informative newsletters and monthly webinars which feature different topics that directly relate to her ongoing medical care. What a valuable resource for the Turner girls and their families! Bravo!