My Nonprofit Reviews

This nonprofit drives research and drug development efficiently. It covers all basis in getting therapies to our kids. Their motto “time is brain” can’t be more fitting. The founder knows very well how to run an organization and they cover all overhead so every donor dollar goes directly to research! This organization give me hope that my little girl will be able to do things she loves and speak her mind one day

This is the best non-profit group made up from parents volunteers. There are so much work behind the scene to fight for kids with a rare disease to accelerate treatment and to connect the entire community together to support one another.

SynGAP research fund is an amazing organization that places tremendous effort in changing the lives of children with SynGAP. After my child received her diagnose at 17 months, the organization reached out to me and helped me learn about SynGAP pointed me to many resources and research that they are funding to accelerate treatments. Although SynGAP is a relative new gene mutation that was just discovered as disease causing within the last decade. SRF was able to collaborate with a brilliant parents, clinicians, and researcher in a organized and financial sustainable manner that made me believe that the life of our children affected by this devastating neurodevelopmental disease will be greatly improved in the next decade I have a child with SynGAP. The journey has not been easy, but I have every reason to believe that it will get easier with the support of this organization