My Nonprofit Reviews

As a dad with a daughter who has SYNGAP1 I am so impressed with the work SynGAP Research Fund is doing to advance science towards a cure. As a board member I get to see the inner workings of this foundation and cannot emphasize the commitment, professionalism and brilliance of the large team working behind the scenes. The achievements of this group in just a couple of years are staggering and are reflecting in real industry approach towards SYNGAP1 cures.
SRF is a fantastic example of what can be achieved by a small patient advocacy group in a short period of time and I cannot speak highly enough about this group.

When my daughter was first diagnosed with Syngap I was devastated. However, as I started to research more, Syngap Research Fund quickly became a source of hope. This is an immaculately managed organization that is laser focused on finding a cure for this terrible condition. The commitment to transparency and urgency to find a cure is inspiring to me and to the wider parent community. When comparing SRF to other rare disease organizations, one cannot help but be impressed at the pace and breadth of what this organization is achieving.

As I have become more involved with the organization and found out more about how things are managed, I have only become more and more impressed; not just with the board but all the volunteers and everyone else who works tirelessly for a cure.