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JJ Vautier B.

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1 reviews

Review for SynGAP Research Fund - SRF (SYNGAP1), San Diego, CA, USA

Rating: 5 stars  

SynGAP Research Fund gave my family a community to belong to and find strength and hope from after our son was diagnosed with a SYNGAP1 mutation causing several developmental delays and physical disabilities. I cannot thank those enough who work so hard to find scientists, clinicians and volunteers to investigate our disorder and work toward treatments for our children. SRF has been integral to putting together an amazing team of researchers, but also parents to provide insight and support during the times of great difficulty and challenges for our family. I am forever grateful to the wonderful members of this organization for helping our family navigate these choppy and uncertain waters ahead for our son and family. Thank you for ALL you do for ALL of our children.

Role:  Client Served