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Review for Kennedys Disease Association, Coarsegold, CA, USA

Rating: 5 stars  

This is One SUPER Organization and a Non Profit one at that. When I was diagnosed, in 1999 there was NO Information available at all. A very scary spot to be in. I had never heard of anyone with this problem. The KDA web site was a source or real information and even stories of other guys with the same problem. All of a sudden I was not alone, and also the in formation about the research going on gave me hope. After I attended my first conference I felt much better. Seeing tthe varing degrees of how the disease impacts everyone differently.

I've personally experienced the results of this organization in...

a real face to face un-varnished truth.

If I had to make changes to this organization, I would...

find more money to donate

Role:  General Member of the Public & Found answers and hope.