My Nonprofit Reviews

A truly inclusive, informed and dedicated organization who have been our lifeline since our precious son was diagnosed. In a world where your child is only one of fewer than 300, life can be isolating and terrifying. BSF has galvanized the international community of affected families, researchers, medical professionals, volunteers and donors through the perfect understanding that it is only through our collective efforts and resolve that we will ultimately triumph over this extremely rare and devastating condition.

Definitely a 5 -star PLUS non profit!