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cpacak

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Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

The BSF is highly supportive of young investigators in the field and this has undoubtedly led to the furthering of our understanding of BTHS and therapeutic development for this rare disease. The conferences are extremely well planned and enable crucial interactions between patients, families, clinicians, and researchers. - Christina Pacak

Role:  Professional with expertise in this field