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TacoKuijpers

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1 reviews

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

BSF is a wonderful supportive and knowledgeable patient organization run by excellent and enthusiastic parents and patients.
The organization have spurred scientists to dedicate their work to elucidate the nature of the disease and come with useful thoughts about potential cures.
Care in the broadest meaning of the word and science are brought together in a translational approach to improve life by means of BSF's efforts

Role:  Professional with expertise in this field