My Nonprofit Reviews

When our son was diagnosed with Barth Syndrome, which is very rare, we did not know where to turn to. Within 24 hours we received a call from members of the Barth Syndrome Foundation and they have use Information of the disease as well as questions we should be asking to get better healthcare for our son. We were able to meet other families with children that also have Barth Syndrome. It gives us a community that understands not only the struggles of our children but also the struggles of the parents that take care of our amazing kids. BSF also is leading the way in finding new medicines and such that will hopefully help children like mine live a more normal life in the future. While this community is small it has been an amazing resource for many and will continue to do amazing things in the future.