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Gina M.

154 profile views
1 reviews

Review for Pulmonary Fibrosis Association of Texas Inc, Houston, TX, USA

Rating: 5 stars  

My mother was diagnosed with Pulmonary Fibrosis in April 2007. I had never heard of PF and there wasn't much information out there. I was scared and confused. My mom moved to Houston in January 2008 and found the Pulmonary Fibrosis Association of Texas (PFAT) soon after. I decided to attend a meeting to see what it was all about and perhaps get some information on the disease. The support group was a wonderful group of people, both caregivers and patients, either with the disease or post transplant. I got a lot of information and more importantly support from everyone there. They shared their experiences and assured me that both myself and my mom were not alone. My mom passed away in August 2008 and soon after I became more involved in PFAT. I am now a Board Member and volunteer as much as I can. This organization is so important to those suffering from PF. Not only does the support group help, but the organization gets them oxygen, medication, and medical equipment that they need to survive. Jan and John Orndorff, who founded PFAT, work tirelessly and constantly to assure that no one is denied oxygen. I am proud to be a part of PFAT!

I've personally experienced the results of this organization in...

The support group was there for my mother who battled PF. I've also seen how the oxygen and medical equipment that they get for PF patients literally saves their life.

If I had to make changes to this organization, I would...

get more volunteers!

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

A lot

Will you tell others about this organization?

Definitely

How did you learn about this organization?

My mom, who had Pulmonary Fibrosis found them while searching for a PF support group.

When was your last experience with this nonprofit?

2010

Role:  Board Member & I am a Board Member and volunteer as often as I can.