My Nonprofit Reviews

Our daughter Giullianna was diagnosed with Alagille Syndrome at 10 weeks, a but over 8 years ago. While figuring out our new normal, I came across the Facbook page for the Alagille Syndrome Alliance, and that moment changed our lives. Through the Alliance have gained a community, support, long lasting friendships, connections, access to medical personnel, access to critical information, and assistance in times of need. We have been recipients of three awards of assistance through the Alliance which have helped us provide a better quality of life for our precious daughter and have eased the financial pressures that come with life with a rare disease. The last of these being the Continuity of Care grant for families impacted by COVID-19, which has helped us educate her at home through this pandemic, ensuring her safety. The Alagille Syndrome Alliance has made a truly significant difference in the life of our family and we could not be more grateful for them.