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Review for Kennedys Disease Association, Coarsegold, CA, USA

Rating: 4 stars  

As a retired otolaryngologist, and a patient of Kennedy´s disease, my contact with Kennedys association has made me start as an informer, of this rare disease, within, my friends, neurologists.

I've personally experienced the results of this organization in...

Thanks to their information, we obtained, the clue to know the source (surname) involved in the transmition of the abnormal gene

If I had to make changes to this organization, I would...

Try to promote similar organizations in all the countries with patients involved

Role:  Volunteer & Contact with the neurologist incharge of patients with abnormal muscular movements.