My Nonprofit Reviews

In the 2 years since my last review, the Alliance did it again. Faced with some tough medical decisions, we reached out to them for some assistance and they set us on the right path. Without their help our Zachary may have undergone some unnecessary surgery involving his Kidney. Additionally, we attended the world TSC Global conference where we learned so m much more about the specific manifestations of this disorder and what progress is being made and has already been made. They even showed us how we could offset some of our out of pocket expenses so that we could attend, having just come from an out of state trip to a specialist.

Best yet was that thru this organization we have strengthened our resolve to keep our heads up and fight for everything Zachary and ourselves deserve because lets face it, this is no task to take on alone. With their mentorship, we now have the confidence and courage that we initially were lacking, so much so that we wanted to be a part of their mission to help others who may be where we were before we reached out. Please do not Navigate TSC without the Alliance to help guide you

We never could have or would have navigated the challenges of getting the proper attention and care for our son if it wasn't for the stories and training we have received from the TS Alliance website and some of it's members I have had the pleasure of meeting over the years.

Due in part because of the work the TS Alliance had done before I was aware of their efforts, my son was able to get on a medication at 6 months old that stopped his type of seizures. This has put him on a much better path than had he not.

I got involved because if not for the many volunteers before me, we could have a much different outlook than we do today. The conferences they have put together for families and doctors have been 1st Class and loaded with information not available anywhere else in the world