My Nonprofit Reviews

LyonsPride - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

LyonsPride

47 profile views
1 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

We never could have or would have navigated the challenges of getting the proper attention and care for our son if it wasn't for the stories and training we have received from the TS Alliance website and some of it's members I have had the pleasure of meeting over the years.

Due in part because of the work the TS Alliance had done before I was aware of their efforts, my son was able to get on a medication at 6 months old that stopped his type of seizures. This has put him on a much better path than had he not.

I got involved because if not for the many volunteers before me, we could have a much different outlook than we do today. The conferences they have put together for families and doctors have been 1st Class and loaded with information not available anywhere else in the world

Role:  Volunteer