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Kari I.

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1 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

I am a parent of a child with TSC and started as a volunteer a year after his diagnosis in 2007. I can't say enough good things about how this organization has supported our family. They have been there to help us when we were having troubles with our sons school, when we needing help finding a support system, updating us on research and connecting us with doctors and specialist that were difficult to find. This is a small but mighty community and the TS Alliance wholeheartedly supports. I never want to welcome anyone into this family of TSC, but if you have to go through something like this, there is no better community to be a part of. The TS Alliance sets the standard and the example for that with everything they do.
As a volunteer, they are extremely supportive, provide training on a regular basis and are always available to help support any situation we are trying to navigate. I have never volunteered for an organization that is this supportive before starting with the Alliance.

Role:  Volunteer