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alannaspotts

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1 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

Our son was diagnosed with tumor sclerosis complex when he was 15 months old. Being a parent is scary but finding out you’re a parent of a special needs child is terrifying. This organization stood by our side the moment we contacted them and has continued to fight and advocate for a cure. The leaders and staff members are beyond incredible, always available to talk or connect families and tirelessly work to bring awareness and funding to this disease. I don’t know where we would be without the TS alliance and its imperative that they be there for newly diagnosed families in the future.

Role:  Volunteer