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alannaspotts

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2 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

The TS Alliance has been a lifeline for our family throughout our TS journey. After our diagnosis, they connected us with doctors and other families. They helped us share our story and build our own community of support and they have been a primary source for information, education and resources. They are an exemplary non-profit organization and we are proud to stand behind them.

Role:  Volunteer
 

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

Our son was diagnosed with tumor sclerosis complex when he was 15 months old. Being a parent is scary but finding out you’re a parent of a special needs child is terrifying. This organization stood by our side the moment we contacted them and has continued to fight and advocate for a cure. The leaders and staff members are beyond incredible, always available to talk or connect families and tirelessly work to bring awareness and funding to this disease. I don’t know where we would be without the TS alliance and its imperative that they be there for newly diagnosed families in the future.

Role:  Volunteer