My Nonprofit Reviews

In February 2008, our first child was diagnosed with Trisomy 18. We both work in Healthcare though neither of us had heard of Trisomy 18. There was little information out there about Trisomy 18. I was desperately looking for information on this relatively rare condition. I needed to know more about what to expect during the rest of my pregnancy, I needed to know how to answer the many questions from family and friends and more importantly, I needed to know more of how and what to plan for our sweet baby. I came across the Trisomy 18 Foundation soon after we received the results that our unborn baby was diagnosed with full Trisomy 18. I am so thankful for this wonderful group! The executive director was very involved on the site. The other members of this group were all at various stages during the Trisomy 18 journey. Some had already experienced the birth of their T-18 baby, some were currently pregnant, while others had just been given the diagnosis. This was and continues to be a wonderful group of people who are willing to share their story of having a child with Trisomy 18. They are all warm and welcoming, non-judgmental and willing to answer any questions.
We were so upset and heartbroken after receiving this diagnosis. This Trisomy 18 Foundation was and continues to be a blessing to us. The many members helped us along in all of the various stages of this journey. Twelve years later, I am still in contact with a few members that I met on this site. What makes this group special is that we can all truly understand each other. There is something about having someone who has gone through a similar experience and who knows and understands what you have been through that helps you to not feel alone. I am so thankful I had this group to help me during one of the most difficult times in my life.