My Nonprofit Reviews

We found out our daughter had Chromosome 18q- in 2013. None of the doctors knew much about it at all, and we were so lost. We found the C18 Registry and Research Society and gained a new family along with invaluable information to help the doctors help our daughter. The research is ongoing and always helping so many families stay on top of their childrens' health and well-being, and it's a wealth of information for the doctors we all see. I don't know where we'd be without the help of the Registry and the wonderful doctors who work there to help our families.