My Nonprofit Reviews

jrissell - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits


815 profile views
1 reviews

Review for Kennedys Disease Association, Coarsegold, CA, USA

Rating: 5 stars  

When my husbands brother was found by the doctors to have Kennedys, I went on the site KDA (kennedys disease association) to see if my husband could have it. It helped to tell about the testing they do to find out if you have KDA. You can have a DNA done. My husband had the testing done over 6 years ago and he now knows what to expect with the disease he has. They have all the information you will need in one spot and at your fingertips. Most people like my husbands brother are misdiaginosed with Lou Gehrig's (ALS). But with the KDA site we found out different. It is a very helpful site with loads of information. JoAnn

I've personally experienced the results of this organization in...

the help they provided.

If I had to make changes to this organization, I would...

not change a thing.

Role:  General Member of the Public & I search for help with a misdiaginosed answer for my brother in law and husband.