My Nonprofit Reviews

Just 13 months ago, back in June 2021, my husband had gone through his 12 hours long, 2nd TBP surgery. If it wasn't for Boston and Jennifer Champy and my many supporters we had throughout his journey, we would not be here today. His pulmonologist has told us, "if we didn't go to Boston, Mike would die here." We had no choice but to prepare and go to Boston.

Our intent was only supposed to be 2 wks at the most. Have the surgery and wait 2 wks for follow up. But instead 2 wks turned out to be 6 long months in the hospital at BIDMC. We fought so hard for him, if it wasn't for this group, I don't think I would of survived it alone. I'm extremely grateful that we have a new chance of living life again.

Thank you so much!

My husband has been diagnosed with TBM roughly 3 years ago. No one really knew what he had. He was in and out of the hospital, intubated/extubated five times. They tried five different types of stents and all failed. He lives with this destructive cough 24/7, mucus plugs, chest and pneumonia infections and has to do monthly bronchs. Last year, he had a robotic tracheobroncoplasty and still till this day he is living in a chair coughing mucus in a bucket. He has to use oxygen, cpap, chest vest, and 5 nebs a day. This disease nearly killed him five times already.

I wanted to understand more about TBM. Just so happens I found CureTBM on Facebook! Communicated with Jennifer briefly about our situation, she has been so helpful with it all. We found out that they have specific Doctors who specializes with TBM, connections to fly to Boston and to get Hospitality homes set up. Without Jennifer, we wouldn't of known what we have out there to support us. It feels good to know that we are not the only ones going through this.

Next step is to go to Boston for an evaluation and redo of trachaebroncoplasty.

All I want for my husband, is to be healthy and to be able to breathe again so we can both start living our lives.