My Nonprofit Reviews

My name is Jackie Pignolet. I have been fighting this disease for over 25 years. I went from one Dr to the next to try to find out what was wrong with me. Every Dr that I went to listened to my story and promised to find out what my problem was. After about 3 years and all the test that the dr could think of they all said the same thing (sorry I did all I could do I can’t help you) . After going though this for about 20 years I gave up and just thought I was going to die until my daughter saw Jennifer and knew that that is what I had. She called me and gave me the phone number to make an appointment in Boston. I didn’t call thinking it was a waist of time so the next day sh called and made an appointment. I saw Dr Majid and he sent me for an MRI and saw my breathing tubes collapsed within 5 minutes. Imagine; I lived an hour away and none of my Drs knew about TBM. I’m in Florida now and when I told my new Dr what I had he said What’s that. I am 90% better than I was . Cure TBM is spreading the word to all Drs. We need help so others don’t have to suffer like I did