My Nonprofit Reviews
Thomas C.3
Review for Cure TBM (Tracheo-Broncho-Malacia Airway Foundation TBMAF), Chapin, SC, USA
As a caregiver, my wife suffered for eleven years before diagnosis. We went from allergy to a pulmonologist, supposed expert in diagnosis of breathing issues, to seek psychiatric care. From being told to lose weight to someone who could not walk ten steps before needing to sit and recuperate to it is all in your head to this is your new normal.
My wife was surfing the internet late at night because she could not sleep when she found the site serendipitously. This was the first time that someone really listened. We got to BIDMC after another pulmonologist said it was not worth being examined. My wife gathered all of the testing scans and what-not and sent to BIDMC. She was eventually stent-tested ( walked me to the ground around Boston) and had the surgery. This was life-saving. I had gotten my wife back. She is now a buddingly successful artist crafter. She is also a moderator if the group and stays up late helping other patients with moral support. I know that my wife sees the group as her new family. My wife is Paula Casey and I am her husband of 46 years Tom Casey.