My Nonprofit Reviews

Having a rare disease means you are a chosen one, and not in a good way. And you feel so alone, because no one has ever heard of your rare, often invisible, definitely non-pronounceable disease. No on. Only by some miracle of google search, you find your tribe, the Myositis Support and Understanding Association. And you "meet" through the miracle of Facebook many others who share your rare disease, and know how to say it!! And, MSU provides a wealth of information and documentation and resources designed to help me live my life with myositis in the best way possible. And the helpful, generous of spirit people in this community collectively offer tips, advice, and we are patient focused. I can not stress that enough. It is so refreshing to find people who want to help me have some quality even though I'm living with a disease that ravages my body. If you or a loved one becomes a chosen one to have any type of Myositis enter your life, your welcoming tribe awaits at MSU. Check them out. You will be glad you did.